MCAS, Migraines, Chronic pain, Dyautonomia, Generalised Anxiety Disorder, Major Depressive Disorder and Borderline Personality Disorder
From Brisbane, Australia
When I began school, I started experiencing chronic pain. Everywhere. Migraines, joint pain, nausea, chronic fatigue and more. My mum struggled getting me to school most days. After many doctors trips, I saw my first specialist in grade 5 and two years later I was diagnosed with hypermobility. Through high school, things started getting worse. I struggled to breathe and started getting blood noses during winter. I finally went to an allergist at 18, after my first oral anaphylactic reaction and was diagnosed with Mast Cell Activation Syndrome (MCAS).
Two years later, I began experiencing severe reflux, to the point I couldn't eat. I lost over 50kg. One day, I lost feeling in my left arm and thought I had a stroke. I presented to the hospital and over the next two months no one could find any reason for my lack of sensation. Deemed a psychological phenomenon, I was admitted to the psychiatric ward for Generalised Anxiety Disorder (GAD), Major Depressive Disorder (MDD) and Borderline Personality Disorder (BPD). I feel that these disorders were worsened as a result of the amount of invalidation I received regarding my chronic pain.
The start of this year (I am now 22) I found a doctor who scanned me for TOS, MALS, and RNS - conditions where the veins and nerves get crushed my bones and muscles to the point of nerve decay. I also got diagnosed with Dysautonomia, which although related to MCAS, has helped me understand many more symptoms.
MCAS is the most challenging aspect of my life, unable to predict what I can safely eat, I have to carry an epi pen around in case I have an attack, it can even be to perfume. My joints are always hurting, and I also live with hives on my back, often going for up to 5 showers a day just to relieve the burn. People with MCAS can even have anaphylaxis to high intensity exercise and even their own sweat.
I currently am conducting a diet of low lectins, low histamine, and as close to raw and vegan as I can.